For some reason the last four days has seen my entire body itching and I have scratched myself raw. I have bruises all over my legs where I have been scratching like a dog with fleas! I saw my consultant today and we assume that as I am now off my Cyclosporin and hadn’t (until this afternoon) had Infliximab for 7 weeks, I must be having an allergic reaction to something else. They have given me Piriton to ease the itching but so far all it is doing is making me very tired.
My blood tests came back normal this week apart from low iron levels so in two weeks time they shall make a decision as to whether I should go back on the Cyclosporin or not. They are reluctant as they think my kidneys will struggle again but they might give it a whirl.
I was kind of relieved to hear that I was still anaemic as I have been feeling really tired recently and finding that I am very weak when dancing. I am still completely stupid and always put my anaemia symptoms down to a million and one other things. I have no idea why I can’t just recognise these symptoms which I have frequently, as anaemia – it is like I have a mental block about it. Anyway, I shall up my iron tablets and try and get that sorted again as when it is level I feel so much better in myself.
Anyway, I spent another boring afternoon having the Inflximab infused. This time they had to give me a single dose of oral prednisolone to counter any possible hypersensetivity reaction to the Inflximab. I was fine and had no reactions, just boredom from being stuck in a hospital all day! Hopefully this will work, although they have no idea as I am still their only UC patient to take it and there is no case they know of people being on it without Prednisolone, Methetrexate Azathioprine or Cyclosporin so only time will tell. As my Gastro nurse says – I am “difficult” 🙂
Well I have not long just taken another Piriton and can already feel it beginning to knock me out so I shall crawl into bed. Fortunately N is off work this week so I am going to be able to take it tomorrow and not worry about having to care for the kids whilst completely dozy!
Off for a knock out sleep…