Jiving on Regardless











{March 1, 2009}   More Anti-biotics!

This weekend hasn’t been too good.  It started off okay apart from my tiredness which had been growing over the week.  Saturday morning I woke up and wanted to go out for the day with my family so we packed a picnic and headed off to a place an hour away.  We got there and realised that it doesn’t open until next weekend – great! Having promised the kids a day out we had to find somewhere to go so we headed back home to a place near us  – an hour back.  All morning I had been feeling dodgy. We had a lovely day at a children’s farm but I felt increasingly ill with what I thought was bad wind – I had stupidly tried to eat baked beans on Friday night.  This feeling got worse and my stomach got more painful and by the end of the evening I couldn’t keep anything down and was throwing up.

By this morning I couldn’t even keep water down and worried about dehydration I called the out of hours doctor.  They asked me to go to the out of hours clinic at the hospital, a place I really hoped I had seen the back of.  It turns out that I have a urine infection which explains all of my symptoms.  I am now on anti-biotics and have been told not to eat for 24 hours.  I am starving so I just tried a biscuit and paid the price so shall stick to the 24 hours now!

All in all not a good weekend.  This is my third lot of anti-biotics in the four weeks since my op.  They say things come in threes so I really hope this is it now and I can truly concentrate on getting well.  It’s not a big deal, many people go through far worse things post op but it is enough to set me on a bit of a downer which I can’t afford right now.  As my surgeon told me – upstairs is where it’s all at so it’s important not to stress and to stay positive.

It doesn’t help that in my search for answers as to why I might be feeling this way I went on the IA website. This is a fantastic support group but I personally find that all the stories on there scare the shit out of me (scuse pun!) and I always come away feeling relieved that my experiences aren’t as bad as theirs and depressed that the future holds all of these different possibilities that aren’t too good.  Please don’t get me wrong, they are great people on there doing a wonderful job, I just can’t cope with the enlightenment at the moment 🙂

All in all I am not feeling on top of the world but I am DETERMINED to get well by next Friday when I intend to dance my heart out in preparation for the intensive dance weekend we are booked on the weekend after.  I shall be fit enough to cope with it, I shall!

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Marianne says:

Lottie,
Sorry to hear about your little health blip….lets hope it resolves quick. I have been told that when you take antibiotics it is especially important to take probiotics (take them a couple of hours before or after antibiotic dose). This is to keep your immunity up. Also of course take it as easy as you can; rest is critical to recovery. Gosh I wonder sometimes why people who have been diagnosed with UC have such vulnerable health; I think our immune systems are imbalanced somehow, either too strong or too weak. And of course the medication and antibiotics mess things up too. Wishing you well over the coming days. Marianne



Lottie says:

Thanks Marianne. I think it just takes a long time for ones body to recover from such an ordeal. Time and patience our brains just don’t have as we want to get on with living!! I am keen to get better now and be truly healthy. One thing is for sure, when I get full health it is something I swear I shall never take for granted and shall be thankful and grateful for every day. Five more days until your reversal, shall be thinking about you that day x



Ali says:

Lottie – anotehr informative blog! I have never visted the IA site before but I just went to have a look and found it to be really useful. I found a forum discussion about life post-surgery and found tremedously reassuring!



Lottie says:

It is an excellent site. If you post a question you will usually get a response from someone within minutes, it is fantastic when you can’t get what you need from professionals. They have a very good thread on post surgery pregnancy which you might find interesting. x



Marianne says:

Lottie,
Wish I was going in for reversal but it will be step 2 of 3 which is Jpouch creation (first was just removing colon) so still a little way to go for me…Yes recovery is really very long for any illness especially a chronic illness and then surgeries on top of that! But we will make it back to health one day at a time. Patience is a hard thing I agree when you’ve been waiting so long but we got to savour all the good moments and there will be more and more as time passes. Keep it up. Marianne



Lottie says:

Hi Marianne,

You did tell me before that it was your J-Pouch surgery next, i’m afraid my brain is taking its time to wake up after my reversal – pleased to report there has been progress this weekend and I am now much more alert.

I hope that tomorrow goes brilliantly for you and you have an easy time of it with your op and post op recovery. Do let me know how you get on. Will be thinking about you.
Lottie x



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